Kindergarten Update

All in all the school year has been going good . . . until last week that is. It was just an overall rough week. 

I need to think of a name for when Gregory acts "crazy". I often refer to it as "crazy" Gregory but thats not nice. I dunno . . . its his alter ego  . . . maybe instead of Gregory he is being, "Senor Loco"???? I'm game for any suggestions. 

Anways, what does "Senor Loco" look like? I can't even describe it . . . its just off, weird, intense, agressive, sensitive, snotty, disrespectful, not obedient, hard, difficult, cranky. 

Sounds fun, huh? 

Whats going on? 

I"m not really sure .  . . . mommy brain of mine cannot figure it out. I think its one or many of the following . . . daddy being out of town, school being hard, not having OT, friends not being nice at school, the heat, his lack of vocabulary . . . 

I don't know. 

I do know at school (so at home too) they are working on the following goals for Gregory:

~Write his name

~Hold a pencil the right way

~Respond appropriately to situations

~Two way conversations

~Articulation

~Colors

~Count to 20 (he can now do 25)

~Shapes

~Identify 15 of the 26 letters

~Self awareness

~Math language

We made it this far.

So, at 2:00 today I got the first call of the school year to come pick up Gregory . . . won't calm down . . . won't comply . . . being too physical . . . ect. Thats improvement right? I mean, last year the first call was in August and this is December! Go Gregory! (sense the slight sarcasm)

You know, this year, Gregory is in a "special" preschool class. You would think all the problems would go away. They don't. Don't get me wrong. For the most part, yes, its been a walk in the park compared to last year's school experience. Even on top of some changes that have been going on in our personal life, Gregory all in all has been thriving. Thank you Lord! 

But I still have "the talk with the teacher" . . . most Fridays . . . when I pick him up . . . we talk about behavior issues and such. 

Will he be ready for kindergarten?

He wants to touch others but does not want to be touched. 

Attention seeking behavior. Ignore or not ignore? 

Need more of his rice milk because he doesn't drink cow milk like the other kids. 

You need to get him evaluated to see if we can rule out autism. 

When will we know if he is ready for kindergarten? 

If he is ready, will he be in a mainstream classroom with strongly urged use of his own aid? Or a special needs classroom?

Where will he go to school? 

He needs to master certain things for Kindergarten like colors, letters, cutting, pasting, ect. 

He does know how to spell "Greg" right now. Makes mommy happy. 

And randomly on Saturday he just belted out his A,B,C's!!!! He'll be 5 in February and I have never been able to teach him this. I almost started crying! So exciting!

All in all he's doing much better this year than last year. This time of year I'm remind that this time last year, his teacher had the talk with me saying she can't keep him there any more. Ugh. So glad to not be there again.

Gregory

Gregory is a very active 3 year old little boy who his daddy and mommy love so much! Gregory was a little angel the first year of his life and since then has kept mommy and daddy on their toes. He is now "strong willed", "spirited", has "sensory processing disorder", has had speech therapy and some occupational therapy. All of these things are hard to deal with now but will make him such an amazing person later.

My question is . . . which of these things and things to come has to do with Galactosemia?

I hope to use this blog for other galactosemia parents to share our experiences and give each other support with this very "unknown" disease. That might be the worse thing about galactosemia . . . the unknowns. :(

My hope it to also use this blog as a communication tool between parents to share our knowledge. I have yet to find anything like this on the web. I will share my knowledge and hope to learn more from others.

There are many other things that define Gregory at this moment that are not related to Galactosemia . . . his love of cars, sponge bob, books, trucks, running out side, fishing, bass, music (both playing and listening), dancing, imitating, acting, being funny, and many others. He is such a special boy in every sense of the word. We love you Gregory!