Friday, March 16, 2012

Tuesday, March 13, 2012

Water pillow thing

I bought the stuff to do this awesome thing with Gregory. Fun for all. Great for SPD. It was a mess. So hard to tape the sides together. It was suppose to be like a water bed type thing that looked like this:

The idea was from this blog:

This is what happened when we did it. Oh well! He still had fun. Gotta laugh, right?

Saturday, March 10, 2012

Here fishy fishy fishy!

Gregory spent the night at Papo and mimi's house last weekend. They want to a near by carnival where they won four goldfish!!! So what dies that mean? That means when you're the grandparents you get to then go spend a lot of money on the ultimate new home for these four goldfish and send them on their way to their new home with us! It's pretty cool and Gregory loves them! Teaching him to take care of them and be a good "daddy". And it's relaxing to look at.

Thursday, March 8, 2012

P B & J?

Did I ever tell you Gregory is allergic to peanuts too? Might as well add it to the list. 😉

The other day we made him his first "sunflower seed" butter and jelly sandwich. He ate about half. Think he wasn't too found of the texture of the sunflower seed butter. None the less, very exciting!

Wednesday, March 7, 2012

This what happens when you let your #4yearold play with your phone.

We booked our Flight!!!!

We booked our flight and hotel for the 2012 Galactosemia Foundation Conference in Dallas, TX!!! Its July 19th-22nd. We are so excited! We loved going last time in 2010. We learned so much! It was so encouraging and discouraging at the same time. We were so glad we went though. And it will be so much more beneficial now that Gregory is two years older. Cannot wait to pic some more brains and learn some more! Galactosemia Foundation

Tuesday, March 6, 2012

Galactosemia Day

 I just got this invitation from Gregory's Metabolic Clinic! How exciting!!!! I cannot wait!!!! Ü

 Galactosemia Day

Your Metabolic Team would like to invite you to our first educational and networking event.
We are going to be presenting our most up to date evidence-based clinical recommendations, having a round table discussion for questions/thoughts, and time to get to know one another.

Please put this on your calendar- we would love to be able to share this time and info with
ALL Galactosemia patients in the state of Arizona.

When: March 22, 2012
            Registration 12:30-1:00pm
            Clinical Update 1:00-2:00pm
            Roundtable and Networking 2:00-3:00pm

Where: Phoenix Children’s Hospital Main Tower
            1919 E. Thomas Rd. Phoenix, AZ 85016
            7th Floor Conference Room #

Questions:        Candice Candelaria, MS, RD                           Melanie Colville, MS, RD
602-933-4363 ext: 83307                                602-933-4363 ext: 83306

Please RSVP by March 19, 2012

Monday, March 5, 2012

Glactosemia Foundation

The group formally know as "Parents of Children with Galactosemia" is now called "The Galactosemia Foundation". And here is their new website! Finally! I'm so excited! Galactosemia Foundation I hope you'll check it out!

Friday, March 2, 2012

He quallified!!!!!

We had Gregory's evaluation through the school district for special ore school and he quallified!!!!

Thanks for all your prayers! When I heard the news I started crying. They wanted to know if I was ok. I told them it was happy tears. I'm sure most patents don't want to hear there child needs "special" preschool. But we want what's best for gregory and God must think this is that!!!
We go back April 25th for one more meeting and then a week later to set up his I. E. P. (individualized education program). Then he'll start the next day!

Thanks for all the prayers and support. I'll pass along more information as I get it!

Thursday, March 1, 2012

S'more Bars

I made these for dessert tonight . . . we're having some friends over. Got the recipe off Pinterest. Pinterest got it from here

I used gregory's margrine (Blue Bonnet Light) and the Ghiradelli Semi Sweet Chocolate Chips to make this totally Galactosemia Friendly! He is going to love this! I think I will too. :)
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