Daiya

Thanks to an old high school friend, I found a cheese Gregory can actually have!!!! ALLELUIA! Its called "daiya". Its found in all those good stores like Trader Joes, Sprouts, Whole Foods, ect. Melts good. A tiny bit stinky. And he likes it! 

http://www.daiyafoods.com/ 

4 Days & Counting

Four more days until Gregory gets evaluated through the school district for special preschool. Friday is the day we've been waiting for since January 6th. This Friday is the day that each day we plug towards. Praying and hoping each day he does good at his current private preschool . . . no hitting, no pushing, good behavior, no potty accidents. He has done so great. I know its because of Gregory but I know its because of God too. I feel like he made this last month go the best it could have gone and for that I am so grateful. Thank you God. :) 

Friday will determine where we go from here. I will keep you posted. Thanks for your kind words, prayers, support and love of Gregory! 

Gregory's Birthday!

I never told you the awesome sensory things Gregory got for his birthday!

His Mamo, momo, and grandpa got him the tunnel thing that feels good to him when he crawls through it. He loves it! And they got him the book, "Squirmy wormy".

Papp and Mimi got him this awesome sensory ball. You can do all sorts of play and exercises on it. He gets lots of input with it.

All these things were so awesome! And he loves and uses them all! Thank you guys! xoxoxo

Daddy's boy

Yearly

Today was Gregory's yearly check up apointment! His Doctor is Dr. Garretty @ Scottsdale Childrens Group. Heres his stats Ü:

Height: 42.5 inches (90%)

Weight: 40.6 lbs (75%)

We've been in the last year for sickness but filled her in on everything since last year like him being diagnosed with S.P.D., no poop in the potty yet, allergic to peanuts, allergy testing, ect. And this is what we found out:

*Nothing to say on the SPD really. More of us just filling her in. Said she hopes he gets approved through the school disctrict because that will really help.

*No poop in the potty . . . she's not worried . . . said we're doing all the right things . . . just keep trying and he'll do it some day.

*Allergic to peanuts . . . she prescribed an epi pen for us to have on hand . . . so thats good . . . put in an order for blood test to test what other allergans he might have. At the same time she'll do his little galactosemia test so he doesn't have to get poked twice. Very nice. :)

*Said to go ahead and test other nuts . . . just have epi pen and bynaryll near bye.

Thats about it . . . needs vacines between now and 6 years old so she said we'll just do next time. :) Sounds good to me! All in all a great check up! Yeah Gregory!

Watch me mommy! Watch me!

Ugh! Oh Gregory. If I hear, "Watch me mommy! Watch me!" one more time I think I'll scream! Oh wait, I do scream. And, he will say it again because he says it every second of the day. And no, I'm not exaggerating. :) 

I think every mommy goes through this at some point during their kids life. Mine is now. Gregory already is a bit "theatrical" and constantly imitating every sign, commercial, picture he sees. This is ALWAYS preceded with "Watch me mommy! Watch me!". Let alone the fact he is at the age where he is figuring out things he can do with his body like big jumps, 360 turns, pretend falling, more jumping. He's feeling very "cool" right now. And he doesn't understand the concept of multi tasking which is what us moms do! He doesn't understand that I can wash dishes and watch him jump 10 times in a row. Let alone breath and watch him at the same time. Any time you're "watching" him and you make the slightest movement he thinks you're not watching and the whole "Watch me mommy! Watch me!" starts again. And again. And again. Whew! 

Any mommy's out there in my same boat? 

Book

"On the night you were born, by Nancy Tillman, is such a sweet special book. Gregory's Mamo gave it to him and we love it. Great book reminding each child how special they are. A must get!

Apples at last!

After learning 2 years ago that Gregory can have ALL fruits and veggies and his clinic recently telling us, "yes, it's ok. Whenever you're ready. ", we decided to we are ok with it!

So, Saturday night Gregory had his 1st apple and LOVED it! Bit right into it like it was nothing. Ate the whole thing. And another one yesterday! This opens up a whole new world for him!

Happy Valentines Day!

I love this shirt for Gregory. We want to wish you a happy valentines day! Xoxoxo

Guide to Galactosemia

So, this past week a updated guide to Galactosemia was released! And here it is for you to look at and use. It has all the new stances on what food is acceptable, questionable, and unacceptable! Enjoy!



Guide to Galactosemia

Classroom

This was posted today on http://www.spdbloggernetwork.com/

Thought it was good info. Maybe Gregory will need some of these things. He uses the disco seat now at preschool. 

Anatomy of a classroom desk.

Here is what Alex’s desk looks like at school. Pretty standard right? Now take a closer look…

See all those arrows? Those are accommodations (standard IEP talk) in action. Granted, you’ll have to double click on the image to see everything, but it’s a good example of what his desk looks like.

He has no less than six things going on in there. That’s excluding his para, squeeze ball, writing prompts and writing paper which are all put away. It was a party after all. His para was there somewhere, in the background probably taking a quick bathroom break, downing a rum and coke, or whatever else you do after spending a day with my kid.

Just joking people, lighten up.

Headsets–he uses these to help block out extraneous noise.

Velcro–on the underside of his desk used as sensory input. This helps him when his hands feel fidgety.

Disco Seat–that yellow thing that looks like a disk. He uses it to sit on, as well as a way to receive pressure when it’s placed on his lap. It’s kinda hard to see on his lap up there, so here’s another picture of it. He uses it with his arms and, honestly, I have no idea what he’s doing but it provides sensory input so we go with it.

Break Card–as in, I need to get the hell out of this classroom right now, kind of break card. He’s supposed to put the card on his desk when he feels overwhelmed and run down to the OT room for a break. Right now, by the time it registers he needs a break, he’s mid-meltdown. Currently, he has three scheduled breaks and takes additional breaks that are prompted by his teacher, para or resource teacher.

Daily Planner–this tells him what is going to happen next as well as any changes specific to him. This is used to prime and prep him (more IEP lingo) for upcoming changes.

Giant Rubber-band–for his feet/legs when he feels wiggly. He uses it to bounce and quickly move his feet on it so he’s not banging his desk against another students.

So there you have it, some of the things my kiddo has at school to help him out. All of these accommodations are specified, in writing, in his IEP.

I hope this helps you if you are looking for sensory ideas in the school setting.

Happy Birthday Bug!

Happy birthday Gregory! We love you so much! You brighten our life every day! We don't know what we'd do with out you! Here is to a great year! Xoxo