Join me in my journey on learning more and more about the metabolic disease, Galactosemia.
Gregory
Wednesday, November 30, 2011
Tuesday, November 29, 2011
What do you want for Christmas?
Its so fun this year with the age Gregory is at with it being Christmas time and all. He can feel the excitement in the air and is constantly saying "Christmas is coming!". So fun. I asked him what he wants for Christmas this year . . . knowing that he doesn't really understand the whole idea of it yet . . . and his answer was, "Lets think . . . um . . . chocolate chips!!!!". He can have the Semi Sweet Ghiradelli Chocolate Chips. So cute! Might throw them in his stocking. I know this will not be the response in years to come. Ü
Monday, November 28, 2011
Thanksgiving
I am so thankful for you Gregory! Thanksgiving what spent wednesday night with Papo and Mimi. He had steak, bread, green beans and graham crackers with frosting on them. Thursday was spent with daddy's side of the family. Bobby made him his own cornish game hen. He ate that and his rhodes roll with great ease. Had to make him eat his jello salad. Horrible parents, aren't we? I think its the whole texture thing he had to get used too. There were brussel sprouts on his plate and salad which he ate none. Big shocker. Auntie brought the kids "kid wine" a.k.a. sparkling cider. Gregory doesn't eat applese yet so she brought him up some sparkling pink grapefruit juice! yum! No pies for this guy. He wanted a bowl (or more) of fruit loops! Happy Thanksgiving!
Tick or treat
What does a cute fireman with Galactosemia do on Halloween? Trick or Treating with his cousins of course! Then mommy and daddy go through the candy to give him what he is able to have! Here are some of the candies he can have!
Chicken Sam-which
Every wednesday Gregory goes to Bobby's house for a Bobby Day. Most days she makes him her famous Chicken Sandwhiches. Canned chicken with mayo on saltines! He looks foward to these sandwhiches. Its one of the few go to meals that he can have. I've made it for him from time to time. Here he is enjoying them!
No news is good news
I haven't posted in awhile. I haven't had any issues to deal with. Nothing really going on. Nothing beneficial to post in hopes of helping others. That all being said, Gregory seems to be doing really great these days. Not to say he doesn't have his days but lately he is just more centered and better able to just function normally.
What has changed you asked? I think mainly his O.T. And then just everyone in his life having a better understanding of him and us all working together.
So, here's to Gregory! And his adorable school picture I just had to show you !
What has changed you asked? I think mainly his O.T. And then just everyone in his life having a better understanding of him and us all working together.
So, here's to Gregory! And his adorable school picture I just had to show you !
Saturday, November 5, 2011
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