Join me in my journey on learning more and more about the metabolic disease, Galactosemia.
OOOOH! I could kiss all those faces!xox
I LOVE it! "Auntie! Auntie! Lookameee!!!" enter surprised, sketchy stink eye face... My favorite! His expressions always make me smile :)
Such character and charm in those faces! A realSuper Star! Hugs and kisses from Papau and Mimi.
Hi Melissa!! So blessed to have found your site!! Such a blessing and so helpful. I couldn't believe it- I thought I was looking at my 3 1/2 year old boy Everett with Galactosemia! Your son Gregory and my Everett seriously could be long lost twins!! They look identical! Please e-mail me at firstname.lastname@example.org I live in Minneapolis with my hubby Darren (www.darrenolson.com) and our 2 boys Emerson age 5 and Everett (3) Everett has Classic Galactosemia- we ARE planning to come to Pheonix in March to visit my in-laws who just bought a home- I'd LOVE to connect. Your site was a blessing- esp. the sensory processing issues- we're trying to figure that out now. Everett's story has been featured in a few national magazines and we have been on a few talk shows as well regarding newborn screening and his Galactosemia! I can't wait to show you pictures of Everett- everyone that I've shown your website to can't believe the simlilarities-right down to the spiked blond hair! :) and my boy loves FRIES and cars! (we just had his special fries after speech today) Thank you thank you for this blog! Blessings to you, Korissa Olson Minneapoliswww.sweetwaterrevival.com