Karate

I've always though martial arts would be something so good for Gregory. He started Karate through Young Champions about a month ago. I think he likes it. Parents don't get to watch. :(Good sensory input! Good self control! Good for self esteem! Good for strength!

Product Find

I saw these in a magazine and now they are a staple on my grocery list. NO DAIRY!!! Gregory loves them!!!! Yeah, I could make them on my own . . . but this is so much more easy!!!!

2nd Anual Costume Party Fundraiser

Picture courtesy of Birdiegirl Photography

You all are invited!!!!

When: Saturday, November 2nd, 2013

Time: 6:00 p.m. 

Where: Phoenix, AZ (Leave comment for exact address.)

There will be food, games, drinks, raffle, bounce house and much much more! 

www.gregorysgalactosemia.blogspot.com

Kindergarten Update

All in all the school year has been going good . . . until last week that is. It was just an overall rough week. 

I need to think of a name for when Gregory acts "crazy". I often refer to it as "crazy" Gregory but thats not nice. I dunno . . . its his alter ego  . . . maybe instead of Gregory he is being, "Senor Loco"???? I'm game for any suggestions. 

Anways, what does "Senor Loco" look like? I can't even describe it . . . its just off, weird, intense, agressive, sensitive, snotty, disrespectful, not obedient, hard, difficult, cranky. 

Sounds fun, huh? 

Whats going on? 

I"m not really sure .  . . . mommy brain of mine cannot figure it out. I think its one or many of the following . . . daddy being out of town, school being hard, not having OT, friends not being nice at school, the heat, his lack of vocabulary . . . 

I don't know. 

I do know at school (so at home too) they are working on the following goals for Gregory:

~Write his name

~Hold a pencil the right way

~Respond appropriately to situations

~Two way conversations

~Articulation

~Colors

~Count to 20 (he can now do 25)

~Shapes

~Identify 15 of the 26 letters

~Self awareness

~Math language

So far so good!

Gregory is already into 4th week of school! Can you believe that?! Crazy! My little kindergartener. 

So far so good . . . his teacher says he's doing well for the most part . . . is so sweet . . . but wants to touch everyone and be in their personal space. He doesn't want you in his be wants to be in yours. This is something his Occupational Therapist has been working on as well. 

Gregory has an I.E.P. (Individualized Education Program). It was done in the school district he was in for preschool. Now we're in a new district so they need to re write it. I have a meeting with "his team" on Wednesday morning to do this. I've already met the speech therapist and I talked to the occupational therapist on the phone this morning. They both seem so sweet. 

I'll keep you all posted on Gregory's goals and how he is doing. 

Then there is the whole lunch issue. He has yet to eat his sandwich at lunch. He'll eat some fruit and his fruit snack. But not his sandwich. Urrrr.   

And then one day last week there was an opened package of Combos, cheese filled pretzels! We've talked to Gregory about not taking food from others as he cannot have any dairy. Scary. Talked to his teacher. She was going to talk to kiddos about not sharing food. We new this day would come. Joys of having a child with a metabolic disease. 

First Day of School

Gregory started kindergarten yesterday! 

The first day went great! We love Mrs. Brown! She said Gregory did great! 

I'm so excited for this new school year for you bug! You are going to do great! 

I love you! 

 

Fundraising Time

We are in the planning stages of our 2nd Annual Costume Party to raise money for Gregory's Galactosemia!! 

It will be 11/2/2013. 

Hope you can come! 

*If you or anyone you know has anything to donate for our raffle, please leave me a comment below! 

One week from today!!!

One week from today, this little boy starts kindergarten!!!!! I am so excited! I hope and pray he does so good! I will keep you up to date as we embark on this new journey! I'm gonna miss this little guy while he is in school all day. :(  I know its going to be so good for him!

The 4th of July!

The 4th of July was a little different this year. We tried to make new traditions. 

We wore our flag shirts we made from Pinterest ! Papo came over (Mimi was in Chicago) and we went and got the drum set papo had been saving for Gregory out of storage! Gregory loved them! 

For dinner we had king crab legs. It was Gregory's first taste. He did not like it. So I popped 2 hot dogs in the microwave. Hebrew National of course! And we had fruit and potato salad! 

Gregory was in charge of putting sprinkles on the brownies. Also, an idea from Pinterest! All Galactosemia safe! 

Papo left and we just relaxed a bit and then to go see fireworks! 

I thought I was the only one with the genius idea of finding a place to park to watch them. WRONG. Fireworks go off not too far from our house. We pulled out to main streets and they were packed! I will say the  parking garage I had in mind was available! They were charging $10 cash to go in. I didn't have any cash on me but the guy let me in anyways!  

They were so beautiful! A few minutes Gregory grew bored and asked to play with my phone. Oh well. LOL

All in all it was a great day! 

Ain't it hot! Hot! Hot!

It is HOT here in Arizona! Looking for ways to get cool!!!! 

A great place here in the valley for any kid is the Arizona Science Center !!!! So much to do here! So fun! And there is AC!!!! We went on saturday. Good sensory stuff to do there too. If you haven't already, go check them out!